Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.

A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...

When talking about people with hemophilia, use language that creates understanding, not pity, says columnist. Words matter.

Half of the children in Chile with severe hemophilia A and B exhibit joint damage despite receiving preventive treatment, a ...

Extended half-life therapies Eloctate and Alprolix safely and effectively controlled bleeds in hemophilia patients' surgeries ...

Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.

More often, Caeleb’s pain hums like a low-level alarm. He’s a living testament to resilience, with a will to keep moving that surpasses his hurt. This is the rhythm of his life, and he has learned to ...

Unless you walk behind me and see the scar running down my spine, you wouldn’t know I have physical limitations. Admitting them often makes me feel less than. But it’s also a testament to my ...

Most people living with chronic illness wrestle with difficult emotions at one point or another, such as frustration, fear, guilt, or helplessness. My husband, Jared, is no exception. Living with ...

What is Hemgenix for hemophilia? Hemgenix (etranacogene dezaparvovec-drlb) is a gene therapy approved to reduce the risk of bleeds in certain adults with hemophilia B. It is administered as a one-time ...