Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.
Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...
A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...
Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.
When talking about people with hemophilia, use language that creates understanding, not pity, says columnist. Words matter.
Half of the children in Chile with severe hemophilia A and B exhibit joint damage despite receiving preventive treatment, a ...
Extended half-life therapies Eloctate and Alprolix safely and effectively controlled bleeds in hemophilia patients' surgeries ...
More often, Caeleb’s pain hums like a low-level alarm. He’s a living testament to resilience, with a will to keep moving that surpasses his hurt. This is the rhythm of his life, and he has learned to ...
Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.
What is Hemgenix for hemophilia? Hemgenix (etranacogene dezaparvovec-drlb) is a gene therapy approved to reduce the risk of bleeds in certain adults with hemophilia B. It is administered as a one-time ...
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